The RENEW study is evaluating options for adults with myelodysplastic neoplasms/syndromes.
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Myelodysplastic Syndromes, or MDS for short, are a group of diseases that happen when the bone marrow doesn't make enough healthy blood cells. Your bone marrow is the soft part inside your bones that makes red blood cells, white blood cells, and platelets. These cells help carry oxygen, fight infections, and stop bleeding.
When someone has MDS, the bone marrow makes cells that don’t work right. These cells may die early or not become full-grown. This can lead to problems like feeling tired, getting sick easily, or bleeding more than usual.
Doctors don’t always know what causes MDS, but there are some things that may raise your chances of getting it. Risk factors may include:
Even if you have a risk factor, it doesn’t mean you will definitely get MDS. And some people with MDS don’t have any of these risk factors at all.
If a doctor thinks you might have MDS, they will do tests to find out for sure.
Some common signs of MDS include feeling very tired, getting a lot of infections, having pale skin, or bruising and bleeding easily. If you notice these symptoms, it’s important to talk to your doctor.
Doctors treat MDS in different ways depending on how serious it is. Some people might get medicines that help their body make more blood cells. Others might need treatments like chemotherapy or a bone marrow transplant if the disease is more severe.
There are also new medicines being tested in clinical trials that could help. The goal of treatment is to help the person feel better and stop the disease from getting worse.
Living with MDS can be hard, but many people live full and active lives with the right care and support. You might need regular doctor visits and treatments to help you feel better.
Here are some tips for living well with MDS:
Scientists are working hard to find new treatments that could help people living with MDS. Clinical research is exploring new medicines that might improve health outcomes.
You can help by joining a patient registry. This lets researchers learn more about people living with MDS and how they are doing. Your experience can help others in the future.
Sign up for our patient registry today. Together, we can make a difference.
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